Would you add anything to this list? Tell us in the comments. An alternative to this is just compliment me like I wasn’t chronically ill.Īlternatives: “It looks like you are having a bad/tricky day, is there anything I can do to help?” I want to be well but I’m not even on those days when ‘I look well’ I’m still in pain. When I get told I look well, it feels as though it’s said as a compliment which further reinforces the stigma and guilt felt around having a chronic condition. Chronic fatigue and painsomnia nights with an endo belly on top, it’s a solid look lol! I have often worked hard to manage, so trust me I feel much worse than I look! I’ve heard both far too many times, please stop telling me when I look bad, I already know. “That’s a really rough time, you’re dealing with a lot, I’m sorry.” Endometriosis Gift, Endometriosis Awareness, Endometriosis Necklace, Endometriosis Jewelry, Endo Warrior, Fighter Necklace. I was in a lot of pain on a lot of painkillers.Īlternatives: Comment on how bad it is, acknowledging that you hear us e.g. Necklace of ethnic groups of Naga, India: their meaning and function through time. This felt like an emotional slap in the face, it felt like people thought I was pretending/attention seeking/etc. I had people close to me say this when I was struggling with symptom management, I just wanted to be believed and supported. Often having to fight to get medical professionals to listen and believe us. After failing to find a support group in the New York area, Jill, Nicole, and Jordan combined. I wish I was exaggerating, but endo properly sucks! Please bear in mind that the average diagnosis for endo takes 7.5 years and a surgery. Endo Warriors is a face to face and online support organization founded by Jill Fuersich, Jordan Davidson, and Nicole Malachi who were all diagnosed via laparoscopic surgery in 2007, 2004, and 2007, respectively. Endo can cause intense pain, pain every day. I’m trying my absolute best to function, but I am sick (sucks but true).Īlternative: Express sympathy/concern for them without the comparison.Įrrmmm…yup it is. Please don’t compare people with endometriosis! There is no correlation between the stages of endo and the symptoms experienced. “My sister/cousin/neighbor’s cat has endo which is much worse, and they seem to be coping much better.” So, adding on extra things is often not an option!Ģ. Also, being sick is hella expensive as it is: prescriptions, loss of pay or work through sickness, etc. I’ve worked hard to accept my endo, and I still have a long way to go. Not throwing a pity party, just plodding on. Buy CHOORO Endo Warrior Bracelet Endometriosis Awareness Jewelry Yellow Ribbon Cuff Bracelet Endometriosis Warrior Support Gift, Metal, online on Amazon. “You could be better if you just tried harder.” I wish relief on all people with endo.īut what I hear when unsolicited advice is given is… Don’t get me wrong, but I’m so genuinely happy for your sister/cousin/shop lady who also has endo who “cure” it with clean eating/yoga/acupuncture/etc. When said without being asked! If I ask for advice obviously that’s a totally different scenario.
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